Each child of a person with HD has a 50/50 chance of being born with the mutated gene that causes the disease. This knowledge affects people in different ways. Some choose not to think or talk about their at risk status. Others think about it constantly. Some choose to live in the moment. Others try to live a balanced life, one day at a time. There is no one way to live at risk for HD. Each individual must decide how to incorporate their at risk status into major life choices, such as marriage, family planning and career decisions. Various resources are available for people at risk for the disease, including social workers and support groups, genetic counselors, and neurologists who can help assess whether any symptoms of concern might be due to HD or to other causes.
Excerpted from “Huntington’s Disease. A Family Guide” with permission from the Huntington’s Disease Society of America (HDSA), www.hdsa.org