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Author Archives: OmanHDA Admin

Teva Announces Results from Exploratory 52-Week Phase 2 PRIDE-HD Study of Pridopidine in Huntington Disease

‘The Pride-HD Phase 2 preliminary results are encouraging as they show – for the firts time – benefits on the disease progression, although the study did not meet its primary endpoint.’ said Prof. Ferdinando Squitieri – LIRH Foundation Scientific Director and Head of The Huntington Disease Research Unit at Casa Sollievo della Sofferenza Research Hospital, Italy – in the meeting ... Read More »

EHDN 2016 Plenary Meeting

The EHDN (European Huntington Disease Network) 2016 Plenary Meeting will take place at the World Forum in The Hague, The Netherlands, 16-18 September 2016. Researchers will present recent research results and family associations from all over Europe and abroad will exchange their experiences and future plans. The Oman Huntington Disease Association will join EHDN 2016. More on http://www.euro-hd.net/html/ehdn2016/announcement and on ... Read More »

Teva Announces FDA Acceptance of New Drug Application for SD-809 for Treatment in Huntington Disease

Teva Pharmaceutical Industries Ltd announced on August 12, 2015 that the New Drug Application (NDA) for SD-809 (deutetrabenazine) has been accepted by the U.S. Food and Drug Administration (FDA) for the treatment of chorea associated with Huntington disease (HD), a rare and fatal neurodegenerative disorder caused by the progressive breakdown of nerve cells in the brain that affects about five ... Read More »

‘The Inheritance’ Huntington’s Documentary – An Intimate Story of a Courageous Family

The inheritance addressed in this illuminating, personal and courageous film could hardly be more daunting. Film editor Bridget Lyon was just 21 when she found out her mother had the gene for Huntington’s Disease, a hereditary degenerative brain condition. At 33, Bridget and her two older brothers – who each had a 50% chance of inheriting the disease – finally ... Read More »

August 17 – 21, 2015: Professor Ferdinando Squitieri from Italy is visiting Huntington Disease patients as MOH consultant at Royal Hospital in Muscat

The Neurogenetics Clinic at the National Genetic Centre of Royal Hospital is open to HD patients and familise from August 17th: prof Squitieri will be visiting patients till August 21. This is the second time in 2015, as the Neurogenetics Clinic has been opened for HD patients also in February. The Neurogentics Clinic for HD is supported by the Omani  Ministry ... Read More »

August 17 – 21, 2014: Prof Squitieri from Italy is visiting Huntington Disease (HD) patients at the Neurogenetics Clinic

From August 17 to 21, 2014 Prof Ferdinando Squitieri from Italy is in Muscat to visit HD patients, to meet their families and to train National Genetic Centre lab personnel on how to perform  the genetic test, with part of his staff, including  geneticist dr. Alba Di Pardo. Prof Squitieri  visits HD patients at the National Genetic Center, Royal Hospital in Muscat, in ... Read More »