EHDN 2016 Plenary Meeting

The EHDN (European Huntington Disease Network) 2016 Plenary Meeting will take place at the World Forum in The Hague, The Netherlands, 16-18 September 2016. Researchers will present recent research results and family associations from all over Europe and abroad will exchange their experiences and future plans. The Oman Huntington Disease Association will join EHDN 2016. More on http://www.euro-hd.net/html/ehdn2016/announcement and on ... Read More »

Teva Announces FDA Acceptance of New Drug Application for SD-809 for Treatment in Huntington Disease

Teva Pharmaceutical Industries Ltd announced on August 12, 2015 that the New Drug Application (NDA) for SD-809 (deutetrabenazine) has been accepted by the U.S. Food and Drug Administration (FDA) for the treatment of chorea associated with Huntington disease (HD), a rare and fatal neurodegenerative disorder caused by the progressive breakdown of nerve cells in the brain that affects about five ... Read More »

‘The Inheritance’ Huntington’s Documentary – An Intimate Story of a Courageous Family

The inheritance addressed in this illuminating, personal and courageous film could hardly be more daunting. Film editor Bridget Lyon was just 21 when she found out her mother had the gene for Huntington’s Disease, a hereditary degenerative brain condition. At 33, Bridget and her two older brothers – who each had a 50% chance of inheriting the disease – finally ... Read More »

August 17 – 21, 2015: Professor Ferdinando Squitieri from Italy is visiting Huntington Disease patients as MOH consultant at Royal Hospital in Muscat

The Neurogenetics Clinic at the National Genetic Centre of Royal Hospital is open to HD patients and familise from August 17th: prof Squitieri will be visiting patients till August 21. This is the second time in 2015, as the Neurogenetics Clinic has been opened for HD patients also in February. The Neurogentics Clinic for HD is supported by the Omani  Ministry ... Read More »

August 17 – 21, 2014: Prof Squitieri from Italy is visiting Huntington Disease (HD) patients at the Neurogenetics Clinic

From August 17 to 21, 2014 Prof Ferdinando Squitieri from Italy is in Muscat to visit HD patients, to meet their families and to train National Genetic Centre lab personnel on how to perform  the genetic test, with part of his staff, including  geneticist dr. Alba Di Pardo. Prof Squitieri  visits HD patients at the National Genetic Center, Royal Hospital in Muscat, in ... Read More »

Oman Huntington Disease Association will participate in the EHDN Conference in Barcelona, Sept 19-21, 2014

For the first time a Middle East patients’ Association will participate in  the European Huntington Disease Network Conference. The International Huntington Association (IHA), the European Huntington Association (EHA), the European Huntington Disease Network (EHDN) welcomed the Oman Huntington Disease Association in joining the international scientific community and the international patients’ community in Barcelona. Thanks to our partner organization LIRH – Italian ... Read More »

Huntington Disease, May 21st, 2014: the first two patients recruited in Europe in the international drug trial Pride-HD are from an Italian Centre

22/05/2014 As reported in April 24, 2014 Teva’s official note, “The Pride-HD Study, is a phase II, dose-finding, randomized, parallel-group, double-blind, placebo-controlled study, that aims to enroll approximately 400 patients at 30 sites across the globe and evaluate the safety and efficacy of pridopidine 45 mg, 67.5 mg, 90 mg, and 112.5 mg twice daily (bid) versus placebo for symptomatic ... Read More »

Pride-HD Study Enrolling Patients Globally to Further Evaluate Pridopidine for the Symptomatic Treatment of Huntington’s Disease

Study initiation represents significant milestone for patients with a disease with limited effective treatment options JERUSALEM–(BUSINESS WIRE)–Apr. 24, 2014– Teva Pharmaceutical Industries Ltd. (NYSE: TEVA) announced today enrollment of the first patient in The Pride-HD study, a phase II, randomized, double-blind, placebo-controlled global study designed to evaluate the impact of pridopidine, an investigational medication, on motor impairment in patients with ... Read More »

Cross Country for Huntington Disease

“In April this year I will be riding my bike for the European Huntington federation; a cycling tour through Europe dedicated to a disease which has wrecked havoc in my family. What it means to my family is the untimely death of my grandmother, the deterioration and the eventual death of my aunt Ria and at present the decline of ... Read More »